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Information about the study

Hello and thank you for your interest.

On this page you will find information about an opportunity to participate in an optional non-interventional study, including:

  • The purpose of this study;
  • A summary of who may be eligible to participate in this survey;
  • An overview of the scope and content of the study;
  • Information regarding potential benefits for participation in the study, including compensation;
  • A summary of your options and rights relayed to participation in the study; and
  • Who you can contact for more information.

Who is conducting this study?
This study is conducted by Clinical Outcomes Solutions (COS), a research company that works closely with pharmaceutical companies to assess the impact of health conditions and their treatments on peoples’ lives.

What is the purpose of this study?
The purpose of this research study is to better understand the impact of physical limitations related to Spinal Muscular Atrophy(SMA), and what kind of day to day activities can or cannot be performed due to those limitations.